Care Plan
1. There are 4 parts to this assignment:
- Watch the Flesh and Blood Documentary, and identify a target family member to develop a care plan for.
- Create a narrative report which will include a) synopsis of the target family member’s disability or chronic illness (medical definition, symptomatology, treatment protocol, complications/risk factors, prognosis); and b) supplemental information including the incorporation of recent theoretical and empirical literature, pertinent legislation, and associated advocacy organizations impacting the population.
- Review the table depicting the 3 principle psychosocial aspects (domains). Select one ‘need ’from each domain to address in your care plan.
- Develop your care plan. Be certain to add under the first column the psychosocial need you will be addressing.
(In sum, your care plan will comprise developing 3 smart goals and interventions to address 3 identified needs)
2. here’s the discussion question……. The documentary is titled, “Flesh and Blood”. Why do you think this title was selected for the documentary?
3. Reply to this post from a classmate……. To be “flesh and blood,” can have two meaningful interpretations. Firstly, being that one has human flaws, weaknesses, and is imperfect. Secondly, another meaning of the idiom is to be one’s own family member, such as being related by “blood.” Both interpretations serve as significant symbols of the title of the documentary. The children in the movie were not perfect and had “flaws”. They all had a form of a disability that altered their daily lives and functionality, however, their mom brought them together to form a family unit to be with other children like themselves. The meaning of family supersedes the physicality of being related by flesh and blood. Even though these children weren’t the mother’s biologically, they were still her own children in her heart and all the children loved each other as family.
Connor Fronk
Care Plan and Narrative
COMPREHENSIVE CARE PLAN
Psychosocial Need
Identified
(1 from each of the
domains)
1)
Acceptance of
disability
(individual)
2)
Family dynamics
(Social)
Child and/or Family Goal
Intervention
Rationale for Intervention
Responsible
Person(s)/Discipline(s)
Family goal: To help Joe
understand that we won’t
make it to adulthood.
To sit down and show Joe
the research/statistics on
mortality rate for people
with CF. Every time there is a
new study, they can present
it to him to show further
reasoning that adulthood
might be very unattainable.
This is relevant because it
might change his attitude
towards his family and the
negativity he harbors as a
whole.
Susan can ask Joe to give 3
compliments to each of his
siblings once a week. This
will allow positive thoughts
to be thought of about his
siblings. In time, she could
increase to having him help
his younger siblings since
he is 15. This will help
provide more help for the
children and also a nice
atmosphere between her
children.
In order for Joe to live a full
life, he must understand
that his disease keeps him
from reaching adulthood.
Majority of CF cases, the
individual with the disease
passes away in their 20s,
sometimes even sooner.
Joe
His parents
His friends
He is very toxic and
disrespectful towards his
mother and siblings. He
causes stress in the home
and makes fun of
everyone’s disability. And
this brings everyone else
down.
Joe
His parents
Child: To become a better
brother and son. He needs
to be more respectful
towards others and this will
allow him to have a better
outlook on life.
Connor Fronk
3)
Healthcare
(Community)
Care Plan and Narrative
Child: To stick to his
treatment protocol.
On top of having a chore
and compliment schedule,
Susan can create a schedule
for when he should wear
both the vest and the O2
mask. If he misses both
during the week, he won’t
receive TV time next week.
If he goes a full month with
completed treatment, he
can be rewarded with
something he enjoys.
He never wears his vest
and this is only half of his
treatment. He needs to do
his breathing treatment
and O2 mask; as well as,
his vest in order to be able
to live the full life that he
wants.
Joe
The family member I am creating a care plan for is Joe and he has cystic fibrosis. Cystic fibrosis is a progressive, genetic disease that
causes long-lasting lung infection and limits the ability to breathe over time. Across the United States, more than 30,000 children and adults
have cystic fibrosis and 70,000 worldwide. CF affects people of every ethnic group and race. Cystic fibrosis causes mutations in the cystic fibrosis
transmembrane conductance regulator (CFTR gene) and causes the protein to become dysfunctional. When the protein malfunctions, it is
unable to help move chloride to the cell surface. Without the chloride to attract water to the cell surface, the mucus becomes thick and sticky. In
the lungs, the mucus clogs the airways and traps germs leading to infections, respiratory failure, inflammations and other complications. The
treatment options for cystic fibrosis are: medications, compression vests, and adequate nutrition. However, there is no cure for cystic fibrosis
but treatment can ease symptoms and reduce complications. Medications help target the gene mutations, prevent lung infections, reduce
airway swelling and thins the mucus.
There have been several empirical studies on this disease. One study titled, Mortality and Survival Studies in Cystic Fibrosis, which
describes the ages of mortality and which gene is affected with the person perishing. A second empirical study titled, A Review of Cystic Fibrosis,
and this study describes the different types of medication that can help satiate the symptoms. Lastly, Cystic Fibrosis and the Family, this study
dives into the hereditary aspect of CS and the different genes that are affected from parent to child. There are several laws that have been
passed that aid the individuals with CS; however, they still are not viable candidates for lung transplants due to the gene being affected, not the
lung itself. Hopefully one day, there will be legislation passed that will overturn this law. Finally, the resources groups that are available for the
individuals with cystic fibrosis. Claire’s Place Foundation is an organization that helps recently diagnosed kids and families cope and with
financial support. Another organization is, Cystic Fibrosis Foundation, which is designated for adults recently diagnosed with CF and provides
different ways to cope. There are several other foundations and legislators out there trying to provide the most for this population!
Care Plan Assignment
The purpose of this assignment is to identify individualized aspects of each of the 3
psychosocial domains (individual, social, community) that we have discussed.
Within these aspects you will be developing a care plan for one of the children from
the movie My Flesh and Blood. You may choose any ONE of the children or the
mother as your focus. In your role as a health care provider your care plan must
include:
1. Synopsis of disability (medical definition, symptomology, standard treatment
protocol, complications/risk factors, prognosis)
2. A narrative incorporating recent theoretical and empirical literature, pertinent
legislation, and associated advocacy organizations impacting the population
(include citations/references).
3. Inclusion of at least 3 goals- 1 from each of the 3 psychosocial aspects domains
(Individual, Social, Community). Care plan is designed to enhance/minimize each
psychosocial aspect.
Writing your care plan goals- please make sure your goals are SMART
(specific, measurable, attainable, relevant, and time-specific)
Please find a helpful link on smart goals below:
COMPREHENSIVE CARE PLAN
Psychosocial Need
Identified
(1 from each of the
domains)
1)
2)
3)
Child and/or Family Goal
Intervention
Rationale for Intervention
Responsible
Person(s)/Discipline(s)
Care Plan
Psychosocial Aspects (3 Principle Domains)
Individual
Compliance with Treatment
or Care Regimen; Symptom
Management
Acceptance of Disability
Self-Care/Degree of SelfSufficiency
Perception of Self
Understanding of
Disability/Awareness of
Needs
Behavioral Development &
Regulation
Emotional Development &
Regulation
Ability to Bond/Attach to
Others
Ability to
Communicate/Express
Emotions
Social
Family Dynamics (emotive
states marital strain, sibling
adjustment, stressors)
Support Systems/Sources
(Formal and Informal)
Socialization
Recreation
Dating/Courtship/Marriage
Community
Barriers to Employment
(current and/or future)
Structural & Environmental
Barriers
Societal Expectations/Public
Opinion
Community Inclusion
Access to Quality Medical
Care
Family’s Ability to Bond with
Child
Peer Interactions
Public Education/Awareness
Behavior
Modification/Management
Strategies
Medical Insurance
Legislation
Advocacy
Healthcare (Multidisciplinary)Team
Care Plan Grading Rubric
15 points
Synopsis of disability (medical definition, symptomology, treatment protocol,
complications/risk factors, prognosis)
15 points
A narrative including the incorporation of recent theoretical and empirical
literature, pertinent legislation, and associated advocacy organizations
impacting the population.
30 points
Inclusion of at least 3 psychosocial aspects, 1 from each of the 3 domains
(Individual, Social, Community). Develop a care plan to enhance/minimize each
psychosocial aspect for the individual with the disability or chronic medical
condition.
Total points = 60
Connor Fronk
Care Plan and Narrative
COMPREHENSIVE CARE PLAN
Psychosocial Need
Identified
(1 from each of the
domains)
1)
Acceptance of
disability
(individual)
2)
Family dynamics
(Social)
Child and/or Family Goal
Intervention
Rationale for Intervention
Responsible
Person(s)/Discipline(s)
Family goal: To help Joe
understand that we won’t
make it to adulthood.
To sit down and show Joe
the research/statistics on
mortality rate for people
with CF. Every time there is a
new study, they can present
it to him to show further
reasoning that adulthood
might be very unattainable.
This is relevant because it
might change his attitude
towards his family and the
negativity he harbors as a
whole.
Susan can ask Joe to give 3
compliments to each of his
siblings once a week. This
will allow positive thoughts
to be thought of about his
siblings. In time, she could
increase to having him help
his younger siblings since
he is 15. This will help
provide more help for the
children and also a nice
atmosphere between her
children.
In order for Joe to live a full
life, he must understand
that his disease keeps him
from reaching adulthood.
Majority of CF cases, the
individual with the disease
passes away in their 20s,
sometimes even sooner.
Joe
His parents
His friends
He is very toxic and
disrespectful towards his
mother and siblings. He
causes stress in the home
and makes fun of
everyone’s disability. And
this brings everyone else
down.
Joe
His parents
Child: To become a better
brother and son. He needs
to be more respectful
towards others and this will
allow him to have a better
outlook on life.
Connor Fronk
3)
Healthcare
(Community)
Care Plan and Narrative
Child: To stick to his
treatment protocol.
On top of having a chore
and compliment schedule,
Susan can create a schedule
for when he should wear
both the vest and the O2
mask. If he misses both
during the week, he won’t
receive TV time next week.
If he goes a full month with
completed treatment, he
can be rewarded with
something he enjoys.
He never wears his vest
and this is only half of his
treatment. He needs to do
his breathing treatment
and O2 mask; as well as,
his vest in order to be able
to live the full life that he
wants.
Joe
The family member I am creating a care plan for is Joe and he has cystic fibrosis. Cystic fibrosis is a progressive, genetic disease that
causes long-lasting lung infection and limits the ability to breathe over time. Across the United States, more than 30,000 children and adults
have cystic fibrosis and 70,000 worldwide. CF affects people of every ethnic group and race. Cystic fibrosis causes mutations in the cystic fibrosis
transmembrane conductance regulator (CFTR gene) and causes the protein to become dysfunctional. When the protein malfunctions, it is
unable to help move chloride to the cell surface. Without the chloride to attract water to the cell surface, the mucus becomes thick and sticky. In
the lungs, the mucus clogs the airways and traps germs leading to infections, respiratory failure, inflammations and other complications. The
treatment options for cystic fibrosis are: medications, compression vests, and adequate nutrition. However, there is no cure for cystic fibrosis
but treatment can ease symptoms and reduce complications. Medications help target the gene mutations, prevent lung infections, reduce
airway swelling and thins the mucus.
There have been several empirical studies on this disease. One study titled, Mortality and Survival Studies in Cystic Fibrosis, which
describes the ages of mortality and which gene is affected with the person perishing. A second empirical study titled, A Review of Cystic Fibrosis,
and this study describes the different types of medication that can help satiate the symptoms. Lastly, Cystic Fibrosis and the Family, this study
dives into the hereditary aspect of CS and the different genes that are affected from parent to child. There are several laws that have been
passed that aid the individuals with CS; however, they still are not viable candidates for lung transplants due to the gene being affected, not the
lung itself. Hopefully one day, there will be legislation passed that will overturn this law. Finally, the resources groups that are available for the
individuals with cystic fibrosis. Claire’s Place Foundation is an organization that helps recently diagnosed kids and families cope and with
financial support. Another organization is, Cystic Fibrosis Foundation, which is designated for adults recently diagnosed with CF and provides
different ways to cope. There are several other foundations and legislators out there trying to provide the most for this population!
Hannah Kelley 3/2/2022
COMPREHENSIVE CARE PLAN: Joe (1987-2002)
Narrative Report:
The following report is based on Susan Tom’s child Joe. Joe is notably the most outspoken child and is the child that starts
the film. He had psychological problems as well as cystic fibrosis. His psychological disorders are a mis of hyperactivity and ADHD equivalents.
Children who have ADHD have experienced subsequent problems including hyperactivity, speech, and learning difficulties1. The epidemiologic
research and diagnosis of ADHD has been diminished due to the constant changes in the definition of the disorder over the past 20 years. It is
typically considered a catch-all definition meaning it is characterized by a plethora of issues. The DSM tried to characterize separations in the
definition by stating with or without hyperactivity and having additional subtypes. Symptoms, as typical in DSM language, must be active for
more than 6 months and have symptoms and impairment before reaching 7 years of age. Treatment is a controversial subject because of the
increased rate of medication treatment that was used after being included in the DSM1. ADHD is more so aligned with a comorbidity with
conditions include learning disabilities, oppositional defiant disorder, conduct disorder, Tourette syndrome, depression, anxiety disorders, and
bipolar disorder (Biederman et al., 1991; Cantwell, 1996; Barkley, 1998). As of now, long-term medicinal research must be done to truly see the
outcome of over-medicating patients with ADHD medications such as Adderall or Ritalin. Advocacy of this condition is very enriched as it is a
heavily common condition in the United States. Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) is one of the many
organizations made to specifically help those affected by ADHD. The other condition Joe has is cystic fibrosis. Cystic Fibrosis is a genetic disorder
that primarily affects the lungs, but also affecting pancreas, liver, kidneys, and intestine. Long-term issues include difficulty breathing and
coughing up mucus as a result of frequent lung infections5. Symptoms otherwise may include clubbing of the fingers and toes, sinus infections,
poor growth, and infertility in most males5. The genetic component of cystic fibrosis comes from the inherited autosomal recessive gene
mutation in the CFTR protein5. You can test for this condition via a sweat test and via genetic testing. This lasts the persons entire life and
prognosis is life expectancy between forty and fifty years with (1 in 3,000) rate in Northern Europe. Treatments for CF include lung transplants,
antibiotics, and pancreatic enzyme replacement5. Advocacy and publication for cystic fibrosis is enriched in current culture, films, and novels.
The Cystic Fibrosis Foundation (CFF) is a voluntary, non-profit organization. Its mission is to assure the development of the means to cure and
control cystic fibrosis (CF) and to improve the quality of life for those with the disease. Currently, a good way to stay informed on CF news is the
website (cysticfibrosisnewstoday.com) which is a page dedicated on reporting the most recent changes and improvements in the ailment.
Joe is affected by both of these health conditions and is most affected by his mental state in daily life. While the CF did inevitably take his
life in 2002, the coping mechanisms Joe employed over the course of the film showed how it was really a psychological issue plaguing his daily
interactions with his family.
Psychosocial
needIdentified
Ability to
Communicate/
Express
Emotions
(individual)
Child and/or Family Goal
Reduction of
aggressive behavior
Intervention
Rationale for Intervention
Joe is obviously rambunctious and full of energy
Taking part in
all hours throughout the day. Sports is a great way
Sports
to tire the mind and body in a healthy manner,
Those, like Joe,
improve social interactions, help in reducing
diagnosed with
hyperactivity and reduce the child like “stir-crazy”
cystic fibrosis are
mechanism.
sometimes told to Having a sport to focus on and improve in will give
not push physical
light to positive behaviors exhibited by other
activity. However,
team members or leaders in the sport. This
many cases of CF are intervention is very straight forward as children
shown to improve
have very straight forward needs to interact in a
while promoting
social environment, interact with peers,
physical activity and
exercise/play, and let out emotional energy
partaking in
without hurting those around them in a healthy
extracurricular
way. Sports would give Joe an outlet and promote
activity.
healthy mindsets all the while.
For a child of his
age, this goal meets
all SMART goal
requirements.
Responsible
Person/Discipline
-Responsibility lies in
Joe’s Mother to facilitate
participation in the sport
and a sport captain or
leader to guide Joe
-Disciplines would be
mapping out practice
times, games, and hours
of outside practice
performed.
Family
Dynamics
(emotive
states marital
strain, sibling
adjustment
stressors)
(social)
Having a healthy
coping mechanism
(while tensions are
running high or in a
situation with a
family member)
Counting to ten and
walking
away/removing self
from situation to go
to bedroom. If not
at home, then retire
to a safe space such
as a restroom or
unoccupied space to
be alone.
This intervention works best for Joe because the
only issue with his ability to interact with his
family members and friends was his inability to
calm himself in situations of high tension. This is
common in children as they do not have a
prefrontal cortex to stop themselves via executive
decisions made in the cortex. This, however, is
even more difficult for those with ADHD. Joe, in
these situations, can remove himself from the
source of his anger/frustration taught via a
counselor not to engage with his anger and to
This goal relates to the
(Coping with a CID
immediately excuse himself as he feels himself
patient’s stability mentally, includes how the
becoming more overwhelmed. Once he has
progressive nature.
person: exhibits and
removed himself, Joe will then focus on counting
Promoting what is
experiences coping as a
affecting the patient’s
state or trait; controls or to 100 or until he is able to breath in and out
stability the most
manipulates their coping without feeling unrelenting anger and is able to
throughout daily activity:
strategies; organizes
think clearly. The neurotransmission of molecules
coping on a range of
in the brain are not everlasting and once focus is
internal–external
shifted away from the source of the anger, the
characteristics; and
responds from affective, molecules will dissipate after a non-specified
cognitive, and behavioral amount of time. The brain will then learn that Joe
coping.) This
will not allow the engagement and promote
intervention will not
executive decision while also giving himself an
replace the therapy and
advantage by removing himself and allowing the
counseling Joe evidently
neurotransmitters to reuptake back out of his
needed in the film.)
synaptic vessel.
This meets all SMART
requirements.
-Main responsible
persons: Joe’s Mother,
Joe, and Joe’s counselor.
The counselor will teach
the mechanism, Joe’s
mother will enforce the
mechanism, and it is up
to Joe to properly
perform it.
-Disciplines: keeping a
notebook/journal to keep
track of how many times
it was properly done and
succeeded, and if Joe
failed to do so and how
he felt about it.
Community
Inclusion
(community)
Interacting positively
in community
environment
Participating in
advocacy groups for
(CF) and (ADHD)
-finding these
groups and seeking
out activity
days/hours with the
groups to spend
some time learning
about his peers with
the same disease as
well as speakers on
this matter.
This meets all
SMART goal
requirements.
This one is extremely important for Joe as his
outlook on his siblings and disability as a whole is
flawed and is from a place of negative energy and
anger at his ailments.
He needs to spend time with people that have
already overcome or are currently struggling with
his ailment to showcase that those with disability
are not ostracized or outcasts—they are merely
normal people with lives, goals, and dreams. This
will facilitate healthy thinking patterns of his idea
of disabled people and relieve the negative
perception of himself.
This type of knowledge will be better taught to
someone other than his mother as he has
probably been told and taught by his mother all
his life and is unwilling to listen. Joe seems to
attach himself to father like figures throughout
the film therefore a strong male role that had
CF/ADHD and was successful for Joe to look up to
would significantly increase his self esteem and
confidence.
-Main persons include
Joe’s mother and a
guide/advocate that Joe
could attach himself to
and idolize (this could
most likely be someone
with his disorders and is
an adult male father-like
figure.)
-Disciplines:Calendar
showing all dates and
planned activities with
groups; Keeping a cork
board/photos on the wall
of himself at these events
to facilitate positive
feelings.
Citations
1. Andrew S. Rowland, Ph.D., MPH Program, Department of Family and Community Medicine, 2400 Tucker NE, University of New
Mexico,Albuquerque, NM 87131. E-mail: [email protected] 21 May 2002; Accepted 23 May 2002Published online in
Wiley InterScience (www.interscience.wiley.com).DOI: 10.1002/mrdd.10036
2. Barkley RA. 1998. Attention-deficit hyperactivity disorder: a handbook for diagnosis and treatment. Second Edition. New York: Guilford.
3. Biederman J, Faraone SV, Keenan K, et al. 1992. Further evidence for family-genetic risk factors in attention deficit hyperactivity
disorder. Arch Gen Psychiatry 49:728–738.
4. Cantwell DP. 1996. Attention deficit disorder: areview of the past 10 years. J Am Acad Child Adolesc Psychiatry 35:978–987.
5. Naehrig, S., Chao, C. M., & Naehrlich, L. (2017). Cystic Fibrosis. Deutsches Arzteblatt international, 114(33-34), 564–574.
https://doi.org/10.3238/arztebl.2017.0564
Purchase answer to see full
attachment
